1. Wales

Cystic fibrosis drug 'delay'

The Cystic Fibrosis Trust has written a letter to the Welsh Government, calling on it to speed up decision-making on a 'life-changing' drug called Kalydeco, which is available to patients in England and will soon be to those in Scotland.

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Welsh patients 'left behind' over cystic fibrosis drug

People in Wales with a form of cystic fibrosis need the same access to a new 'life-changing' drug that people in England are getting, according to a charity. The Cystic Fibrosis Trust has called on the Welsh Government's Health Minister to speed up the approval process.

It's written a letter to Lesley Griffiths, saying that withholding a decision on funding Kalydeco (also known as Ivacaftor) here until May would cause 'considerable heartache' and 'agony' for families here. It has been available in England from 1 January 2013.

We are very concerned that, because the All Wales Medicines Strategy Group is not expected to come a decision until May, Welsh patients face a wait of at least four months, when the drug is freely available within the NHS England. A decision this week means Scottish patients are now also able to access Kalydeco from 1 March. This is causing considerable heartache and agony for families affected in Wales. The Cystic Fibrosis Trust would be appalled at a situation where people in Wales were denied a potentially life-changing treatment freely available to those in England and soon Scotland.

– Letter from Ed Owen, The Cystic Fibrosis Trust's Chief Executive

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