People in Wales with a form of cystic fibrosis need the same access to a new 'life-changing' drug that people in England are getting, according to a charity. The Cystic Fibrosis Trust has called on the Welsh Government's Health Minister to speed up the approval process.
It's written a letter to Lesley Griffiths, saying that withholding a decision on funding Kalydeco (also known as Ivacaftor) here until May would cause 'considerable heartache' and 'agony' for families here. It has been available in England from 1 January 2013.
We are very concerned that, because the All Wales Medicines Strategy Group is not expected to come a decision until May, Welsh patients face a wait of at least four months, when the drug is freely available within the NHS England. A decision this week means Scottish patients are now also able to access Kalydeco from 1 March. This is causing considerable heartache and agony for families affected in Wales. The Cystic Fibrosis Trust would be appalled at a situation where people in Wales were denied a potentially life-changing treatment freely available to those in England and soon Scotland.
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An event was held this morning to mark the 80th Anniversary of volunteers from Wales joining the fight against fascism in Spain.
The region extended their unbeaten run at home in the league to five games.
Cloudy skies mean we'll escape largely frost-free overnight! Feeling much milder with drizzle in the east at times.