"This research is one of the first clinical trials to assess whether a drug can improve brain function in people with an inherited disorder.
"The potential benefits of this treatment include an improved quality of life for affected patients and wider benefits for their families and carers.
"If it works it will benefit patients directly and could provide clues as to whether this class of drugs (called mTOR inhibitors) might have wider benefits in problems like autism."
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Starting at Cardiff Castle, they will meet members of the public before enjoying a taste of Welsh culture, sport and heritage.
The decriminalisation of cannabis for medicinal use for those suffering with Multiple Sclerosis and cancer will be debated by AMs today.
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