"This research is one of the first clinical trials to assess whether a drug can improve brain function in people with an inherited disorder.
"The potential benefits of this treatment include an improved quality of life for affected patients and wider benefits for their families and carers.
"If it works it will benefit patients directly and could provide clues as to whether this class of drugs (called mTOR inhibitors) might have wider benefits in problems like autism."
More top news
The Met Office has issued a yellow warning to be aware of heavy rain overnight
An ITV News investigation has revealed a twenty-fold increase in police incidents involving legal highs in Wales in just two years.
The Met Office has issued severe weather warnings for much of Wales for tonight, believe it or not!