"This research is one of the first clinical trials to assess whether a drug can improve brain function in people with an inherited disorder.
"The potential benefits of this treatment include an improved quality of life for affected patients and wider benefits for their families and carers.
"If it works it will benefit patients directly and could provide clues as to whether this class of drugs (called mTOR inhibitors) might have wider benefits in problems like autism."
More top news
Heavy rain and thunderstorms will affect many parts of Wales this weekend - particularly during Saturday evening.
A paddle steamer has sunk off the north Wales coast while it was being towed towards Northern Ireland.
The heavy rain will ease overnight, with mist and mild temperatures!