Campaign to introduce cystic fibrosis drug

pharmacy sign
A protest is due over a draft decision not to recommend a new cystic fibrosis drug Credit: Danny Lawson/PA Archive/Press Association Images

A protest over a draft decision not to recommend a new cystic fibrosis drug is due later. Campaigners keen to see Kalydeco introduced across Wales are aiming to make their voices heard outside a meeting of the All Wales Medicines Strategy Group at the Angel Hotel in Abergavenny.

The group will look at the recommendation and decide whether to approve it or not. The drug - which is already available in England, Scotland and Northern Ireland - is the first licensed drug that treats the G551D mutation - the fundamental defect in those with cystic fibrosis.

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Cystic fibrosis drug decision

Health Minister Mark Drakeford says the cystic fibrosis drug ivacaftor (Kalydeco)) will be made available in Wales. It follows protests after a strategy group recommended the drug should not be made available due to cost.