Families and supporters of those who have cystic fibrosis have spoken of their distress after a decision was made today not to recommend a drug that can increase the quality and life expectancy of those with a certain mutation.
The All Wales Medicines Strategy Group voted not to recommend Kalydreco be given to cystic fibrosis patients aged 6 or over.
One reason given was cost-effectiveness had not been proven. It's reported the drug costs £180,000 every year for a patient to receive the treatment.
One couple told ITV Wales that they may contemplate leaving Wales as the drug is available free in the rest of the UK. The Health Minister Mark Drakeford will have the final say on whether the drug will be introduced here.
More top news
Former Cardiff Blues captain Andries Pretorius has been forced to retire from the sport after being diagnosed with a muscle disorder.
As the Met Office issues a cold weather warning, spare a thought for the chimps struggling to keep warm at this Ape and Monkey Sanctuary.
Care workers in the Rhondda who were made redundant say they could lose their homes as redundancy money has still not been paid.