"It is appalling that people with cystic fibrosis in Wales are being denied a potentially life-changing treatment freely available to those in England, Scotland and Northern Ireland. The Trust is now urging people in Wales to write to their Assembly Member to ask them to make a plea to the Health Minister not to accept this recommendation.
"This situation is causing considerable heartache and agony for families affected in Wales. We cannot have a situation where patients in Wales are treated as second class citizens. Many patients in Wales attend specialist clinics in Liverpool, and Manchester, to see people living in England accessing this medicine and not be able to have it themselves is completely unacceptable."
More top news
Tributes have been paid after two Matalan employees were allegedly stabbed to death near the city centre store where they worked.
A damp start to the night with heavy rain spreading southwards. It will clear by the early hours to leave a dry start tomorrow.
A mother of two has told ITV Wales she's saving money to buy life extending cancer drugs as she anticipates the NHS won't fund them.