"It is appalling that people with cystic fibrosis in Wales are being denied a potentially life-changing treatment freely available to those in England, Scotland and Northern Ireland. The Trust is now urging people in Wales to write to their Assembly Member to ask them to make a plea to the Health Minister not to accept this recommendation.
"This situation is causing considerable heartache and agony for families affected in Wales. We cannot have a situation where patients in Wales are treated as second class citizens. Many patients in Wales attend specialist clinics in Liverpool, and Manchester, to see people living in England accessing this medicine and not be able to have it themselves is completely unacceptable."
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Details of the road closures and train delays ahead of Ed Sheeran's concert over the next four evenings.
Temperatures will not be quite as high as the last few days but it will still feel warm in the sunshine.
There will be a fresher feel with temperatures falling lower than on recent nights.