People with the neurological condition ME say there are no specialist services for them in Wales, and they have found found a lack of sympathy or knowledge in the NHS and social services here.
Michelle Penny is 28 and from Dinas Powys in the Vale of Glamorgan.
She describes how her "day-to-day life is really difficult", and that she has been "pushed to the back and ignored".
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Very cold and windy. Some sunny breaks but plenty of snow showers feeding in the from the east.