People with the neurological condition ME say there are no specialist services for them in Wales, and they have found found a lack of sympathy or knowledge in the NHS and social services here.
Michelle Penny is 28 and from Dinas Powys in the Vale of Glamorgan.
She describes how her "day-to-day life is really difficult", and that she has been "pushed to the back and ignored".
More top news
Plenty of fine dry weather to come today and prolonged spells of sunshine. A cool easterly breeze will take the edge off the temperatures.
The three-day event in the Welsh capital is expected to attract more than 20,000 visitors.
Steve Ashton's picture of a jacket potato and corned beef served to his 81-year-old mother has been shared 130,000 times on Facebook.