People with the neurological condition ME say there are no specialist services for them in Wales, and they have found found a lack of sympathy or knowledge in the NHS and social services here.
Michelle Penny is 28 and from Dinas Powys in the Vale of Glamorgan.
She describes how her "day-to-day life is really difficult", and that she has been "pushed to the back and ignored".
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Well a fabulous day today has ended on a spectacularly soggy note for some! Heavy rain, hail and thunder will work northwards overnight!
The Talyllyn runs from Tywyn, near Aberdovey, for more than seven miles to two villages in the south Gwynedd countryside.
Homes in parts of Tonypandy and Llwynypia are without water this evening due to a burst water main at Cilfynydd.