"We have a growing recognition and a growing investment in conditions such as Alzheimer's, but conditions such as ME are not so readily recognised or invested in" says Ana Palazon, Chair of the Wales Neurological Alliance.
"We want parity and equity of recognition and services for all conditions."
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A Welsh charity bringing together singers with dementia and their families is launching a new campaign to get others to share songs.
The children - who are two of three triplets - were found not breathing at a property in Bridgend, Wales.