Parents of children with Cerebral Palsy in Wales say that their youngsters are missing out on potentially life-changing surgery. The pioneering operation called Selective Dorsal Rhizotomy, or SDR, is available on the NHS in England but is not funded here in Wales.
Chase Vaughan, is a happy and playful seven year old girl but the nerves in her legs are over active, because she has Cerebral Palsy. It causes severe tightness in her muscles, known as spasticity, so she wears leg braces and after just a few minutes playing she becomes exhausted and frustrated.
As she gets older her condition is deteriorating.
Her mum, Helen says:
“She’s finding it tough. She’s starting to get pain in her legs which she didn’t have before. My concern is obviously it’s just going to get progressively worse and she could end up in a wheelchair."
Helen is convinced that the SDR operation would improve Chase's life and in order to pay for the operation and intensive physiotherapy afterwards, Chase’s family have been trying to raise forty thousand pounds.
Tonight, Wales This Week talks to Helen, and her daughter about their battle to offer Chase the operation which could change her life.
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There is likely to be a good deal of cloud around today, thickest in the southeast, where outbreaks of rain are possible at times.
A dry night with clear spells for most, especially towards the north where it will become rather chilly with some mist patches possible.