A man suffering from motor neurone disease who campaigned for the right to use experimental drugs has died.
Les Halpin from Wotton-under-Edge in Gloucestershire wanted terminally ill patients to be allowed to join drug trials in return for waiving their rights to sue if there were side effects. His family says it was his clear wish that his campaign should continue.
The MP organising a meeting at Westminster to support drugs testing on terminally ill patients says he's very encouraged by the outcome. Cotswolds MP Geoffrey Clifton-Brown, brought together medical experts with the Government's spokesman on the subject, George Freeman MP.
At present there are legal and regulatory obstacles to prevent a repeat of the Thalidomide case, when children were born with missing limbs after their mothers took a drug to ease morning sickness.
Now Mr Clifton-Brown is backing a campagn by Les Halpin from Wotton-under-Edge - to be known as the Halpin Protocol - which would in certain circumstances allow terminally ill patients to consent to test unlicensed drugs. Following today's meeting, these proposals will now be put before ministers.
A campaign led by a man from Gloucestershire to allow terminally-ill people to test unlicensed drugs, has been discussed at Westminster. Les Halpin, from Wotton-under-Edge, suffers from Motor Neurone Disease and wants the process of developing potential new remedies to be speeded up.