Human guinea pig campaign

A campaign led by a man from Gloucestershire, to allow terminally-ill people to test unlicensed drugs, has been discussed at Westminster

Campaigner for experimental drug use dies

Les Haplin campaigned for the right to use experimental drugs Credit: ITV News West Country

A man suffering from motor neurone disease who campaigned for the right to use experimental drugs has died.

Les Halpin from Wotton-under-Edge in Gloucestershire wanted terminally ill patients to be allowed to join drug trials in return for waiving their rights to sue if there were side effects. His family says it was his clear wish that his campaign should continue.

MP 'encouraged' by meeting

The MP organising a meeting at Westminster to support drugs testing on terminally ill patients says he's very encouraged by the outcome. Cotswolds MP Geoffrey Clifton-Brown, brought together medical experts with the Government's spokesman on the subject, George Freeman MP.

At present there are legal and regulatory obstacles to prevent a repeat of the Thalidomide case, when children were born with missing limbs after their mothers took a drug to ease morning sickness.

Now Mr Clifton-Brown is backing a campagn by Les Halpin from Wotton-under-Edge - to be known as the Halpin Protocol - which would in certain circumstances allow terminally ill patients to consent to test unlicensed drugs. Following today's meeting, these proposals will now be put before ministers.

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'Human guinea pigs'

A campaign by a terminally-ill Gloucestershire man to be allowed to test unlicensed drugs is being discussed by medical experts in London.

Les Halpin from Wotton-under-Edge, suffers from Motor Neurone Disease. He wants the terminally ill to be allowed to be 'human guinea pigs'.