A father from Dorset has to keep a constant watch on his child because his disability means he could die at any second. Alexander Woodward's son has epilepsy, which is so severe that seizures can happen hundreds of times a day.
His four year old son Charlie has Otahara Syndrome, which claimed the life of the Prime Minister's son Ivan five years ago. Duncan Sleightholme has this exclusive report.
Frenchay Hospital has been named as one of four national centres for helping children with epilepsy. The hospital already treats young patients with the condition, but from November it'll specialise in carrying out neurological surgery.
The unit will treat more than 25 per cent of patients in the UK and provide training for surgeons across the world.
Frenchay Hospital near Bristol is to become a specialist centre for treating children with epilepsy.
It will be one of four in the country and help a quarter of all children in the UK with the condition. The hospital will carry out surgery on young patients whose epilepsy is resistant to drugs and also research the illness.