The family of Tony Nicklinson have set up a charity fund in his memory. His widow Jane and daughters Lauren and Beth are raising money for the Royal National Hospital for Rheumatic Diseases in Bath. The hospital specialises in treating people with chronic conditions.
It was a peaceful end to a very uncomfortable battle for Tony Nicklinson.
He had campaigned unsuccessfully for the right-to-die since being paralysed by a stroke in 2005. This morning he died of natural causes at his home in Melksham, surrounded by his family.
His final message was simple: "Goodbye world, the time has come."
People with locked-in syndrome are usually completely paralysed, and are unable to speak or move.
Sufferers can think and reason and can generally move their eyes
The disorder can follow a traumatic brain injury, such as a massive stroke
Although there is no cure, therapy such as functional neuromuscular stimulation can sometimes benefit victims by activating some of the paralysed muscles