125 children a year are dying from brain tumours because the UK is 50% slower at diagnosing children's brain tumours than similar countries worldwide.
Statistics show the UK has the highest number of child deaths compared to other Western European countries.
Sacha Langton-Gilks, from North Dorset, whose own son David died as a result of a brain tumour in 2012 has joined the HeadSmart project to raise awareness of the symptoms of brain tumours in children and young people.
Today she is meeting with the Department of Health in a bid to further the cause.
More top news
We've been getting acquainted with the Shaun the Sheep sculptures heading out on location for this summer's trail across Bristol
The Shaun in the City sculpture trail, which hits Bristol's streets on Monday, was given its official, and typically unusual, launch today.
Not enough beds and an agonising wait for the right help - a mother describes the anguish of trying to save her anorexic daughter.