125 children a year are dying from brain tumours because the UK is 50% slower at diagnosing children's brain tumours than similar countries worldwide.
Statistics show the UK has the highest number of child deaths compared to other Western European countries.
Sacha Langton-Gilks, from North Dorset, whose own son David died as a result of a brain tumour in 2012 has joined the HeadSmart project to raise awareness of the symptoms of brain tumours in children and young people.
Today she is meeting with the Department of Health in a bid to further the cause.
More top news
Bristol City Council is set to debate its controversial 20mph speed limits - after thousands signed a petition to calling them 'ludicrous'.
A runner from Bristol is about to embark upon a marathon challenge around the UK, running 26 miles every day for more than a year.
People have been paying tribute to the victim of a suspected hit and run in Bristol, who has been named locally as Dan Hickey.