- West Country
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A mother from Plymouth is hoping that by speaking out about her little boy's extremely rare disease, drugs companies might find a cure for the condition.
Lara Starhahn's son, Marshall, suffers from Late Infantile Batten Disease, a fatal disorder of the nervous system which means he has only has a few more years to live.
Only 24 children in the country have the disease - and at the moment there is no cure.
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A Plymouth mother tries to raise the profile of her son's rare disease to encourage drug companies to find a cure