When the Bolton footballer Fabrice Muamba collapsed on the pitch last month there was some surprise that someone so apparently healthy could succumb to heart disease. But every week in the UK, 12 young people die unexpectedly from similar conditions.
John Andrews reports on how a couple from Paignton whose son died at the age of 21 joined other families in Taunton for a campaign to get more young people tested.
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Parents have said they are pulling their children out of school for the day in strike action against the government.
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