11 year old Ethan Jones has a very rare condition called Ring Chromosone 14. There are just 40 to 60 cases worldwide. It causes epilepsy, respiratory problems and global delay. It means Ethan needs care around the clock.
Children's Hospice South West helps families like Ethan's. Its three hospices in the region offer care for children who have illnesses which mean they wil die before reaching adulthood. It is supported by the charity, Together for Short Lives.
For more information on Together for Short Lives click here
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Sunny and warm again for another fine dry day. Feeling warmer than yesterday with highs of 22 °C.
Another day for shorts and skirts as the sun sticks around keeping us warm for another day.
Plenty of sunshine as the longest day of the year draws to a close.