11 year old Ethan Jones has a very rare condition called Ring Chromosone 14. There are just 40 to 60 cases worldwide. It causes epilepsy, respiratory problems and global delay. It means Ethan needs care around the clock.
Children's Hospice South West helps families like Ethan's. Its three hospices in the region offer care for children who have illnesses which mean they wil die before reaching adulthood. It is supported by the charity, Together for Short Lives.
For more information on Together for Short Lives click here
More top news
The NSPCC are providing 'Pregnancy in Mind' classes to help women through the ups and downs of motherhood.
There is a bit of rain around but this should clear fairly quickly. It will be cloudy but will stay dry through the day. Highs of 17 C
A cloudy start with more rain on the way - particularly in the West. Temperatures will hit 16 to 17 C