The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. We have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with cystic fibrosis and their families. We believe that everyone with CF deserves the best quality of life and real hope for the future, with access to high quality, specialist care. Everyone needs a helping hand sometimes, whether it’s guidance with a specific problem or just a friendly, knowledgeable person to chat to. Our confidential helpline offers general advice, support and information on any aspect of cystic fibrosis, including help with financial support.
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic conditions. Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.
We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families.
Sibs is the only UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations. They also want to have positive relationships with their disabled brothers and sisters and to be able to choose the role they play in future care. We support siblings of all ages who are growing up with or who have grown up with a brother or sister with any disability, long term chronic illness, or life limiting condition. We have a phone and email service for adult siblings for help with any adult sibling issue. The issues we provide support with may be emotional, such as coping with isolation or guilt, or practical, such as how to make plans for future care. We have an online forum for adult siblings, a buddying service, and we run workshops on adult sibling issues.