This leaflet has been written to help you understand more about dystrophic epidermolysis bullosa and epidermolysis simplex. It tells you what it is, what causes it, what can be done about it, and where you can find out more about the condition.
DEBRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB). We provide social care support to help people live with dignity. This is a service parents and people with EB can call on, to reach out for advice, advocacy in the face of red tape, and emergency grants. We provide access to specially adapted holiday homes and opportunities for social interaction. We interconnect each of these areas to ensure a holistic approach to our care, from birth, for as long as it is needed.