Ataxia-Telangiectasia (A-T)
Tel: 01582 760733
www.atsociety.org.uk
The A-T Society is here to support anyone affected by Ataxia-Telangiectasia (A-T) or a variant of A-T and the people who care for them. To improve quality of life and quality of care for people living with A-T while actively promoting research to lengthen lives and ultimately bring about a cure.
Action for A-T
www.actionforAT.org
Action for A-T raises money for research into a cure for Ataxia-Telangiectasia
Contact a Family
Helpline: 0808 808 3555
www.cafamily.org.uk
Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. The charity also enable parents to get in contact with other families, both on a local and national basis.
Genetic Alliance UK
Tel: 0207 704 3141
www.geneticalliance.org.uk
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic disorders.
Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.
Rare Disease UK
Tel: 020 7704 3141
www.raredisease.org.uk
RDUK is the national alliance for people with rare diseases and all who support them. In order for RDUK to accurately reflect the needs of the rare disease community in our policy work, we carry out activities to capture the experiences of those living with, or working in the field of, a rare disease. This includes conducting surveys of patients and families, consulting with our members and a wider audience on the issues that affect them, and holding meetings, workshops and conferences to provide the opportunity to gather evidence and collect opinions.