NHS Choices – Down’s Syndrome
Comprehensive NHS website with everything you need to know about Down's Syndrome including causes, symptoms, diagnosis and treatment, with links to other useful resources.
The Down’s Syndrome Association
Helpline: 0845 230 0372
We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them. We strive to improve knowledge of the condition and champion the rights of people with Down's syndrome. We provide a helpline; provide info about all aspects of living with Down's syndrome including specialist advisers on benefits, education and health and advise new parents or anyone experiencing difficulties.
Down’s Syndrome Scotland
Helpline: 0131 313 4225
Down’s Syndrome Scotland works to improve the quality of life for everyone in Scotland with Down’s syndrome and their families. We provide support and information to pregnant women and families who have a child with Downs Syndrome and work to help people with Down’s syndrome reach their full potential by providing information, services and support to them, their families, carers and professionals.
Down’s Heart Group
Helpline: 0844 288 4800
A charity offering support and information relating to heart conditions associated with Down's Syndrome. We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including: one to one support, telephone helpline and newsletters. Excellent links to other useful organisations.
Downs Syndrome Research Foundation
Our mission is to undertake research which will help to identify and develop interventions which alleviate the medical, physical, developmental and cognitive conditions associated with Trisomy 21 which are collectively described as Down’s syndrome. We understand the challenges, talk to the researchers and initiate important research.
Down Syndrome Education International
Down Syndrome Education International transforms the lives of young people with Down syndrome through better education. Our scientific research identifies effective teaching methods. Our services help families, professionals and organisations to support successful education. For over 30 years, we have improved understanding of the learning needs of children with Down syndrome and pioneered effective teaching and therapy approaches.
Contact a Family
Helpline: 0808 808 3555
Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.
Action for Sick Children
Helpline: Freephone 0800 074 4519
UK’s leading children’s healthcare charity, specially formed to see that children receive the highest standards of healthcare possible
The Sick Children’s Trust
Tel: 020 7931 8695
The Sick Children’s Trust believes that no child should be separated from their family while in hospital receiving treatment for serious illness Our mission is to provide high quality 'Home from Home' accommodation for families whose children are receiving hospital treatment for serious illness.
The Family Fund
General enquiries: 08449 744 099
The Family Fund provides grants to families with severely disabled children, based on families' views and needs and is open to families with children and young people up to their 18th birthday who have a severe disability.
The Shared Care Network
Shared Care Networks Short breaks support families caring for disabled children and can promote family stability and ease the strain which can build up in a family dealing with the demands of caring for a severely disabled child. They allow parents to spend time with their other children and benefit the disabled child by tackling social isolation.
The Children’s Trust
Telephone: 01737 365 000
The Children’s Trust is a national charity working with children who have multiple disabilities and complex health needs. We are based in Surrey but offer our services to children from across the UK.
The Princess Royal Trust for Carers
Carer’s Direct Helpline: 0808 802 0202
Websites: www.carers.org and www.youngcarers.net
The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.
Helpline: 0808 808 7777
Wednesday and Thursday, 10am to noon and 2pm to 4pm
Carers UK provides information and advice to people who provide unpaid support to their relatives, partners or friends who are chronically ill, disabled or frail.
Helpline: 0856 450 6555
Crossroads service is about giving time - improving the lives of carers by giving them time to be themselves and have a break from their caring responsibilities.
British Pregnancy Advisory Service
Tel: 0845 730 4030
Information and counselling on pregnancy issues, abortion and fertility.
Tel: 0845 300 8090
Any woman wanting unbiased information about her options and assistance in arranging a consultation about an unplanned pregnancy can contact Marie Stopes One Call.
Helpline: 0800 028 2228
Free confidential help if you are facing an unplanned pregnancy or have post-abortion concerns.
The Stillbirth and Neonatal Death Society (SANDS)
Helpline: 020 7436 5881
SANDS provide support for bereaved parents and their families when their baby dies, before, during or soon after birth as well as information and support for healthcare professionals.
The Miscarriage Association
Helpline: 01924 200 799
We know that miscarriage can be a very unhappy, frightening and lonely experience. If you have been affected by the loss of a baby in pregnancy, whether recently or long ago, we hope that you will find here support, information and comfort.
The Child Death Helpline
FREEPHONE: 0800 282 986
Additional Freephone number for ALL mobiles: 0808 800 6019
The Child Death Helpline is a helpline for anyone affected by the death of a child of any age, from prebirth to adult, under any circumstances, however recently or long ago.
Life after loss
Life After Loss is an online support community set up in November 2006 by bereaved mothers who find support and friendship through sharing their grief over the loss of a baby
at any stage of pregnancy or after birth.