Helpline: 0845 271 2811
Fanconi Anaemia is a genetic disorder affecting children that causes bone marrow failure and predisposes to cancer. The UK and Ireland Fanconi Anaemia Family and Clinical Network has been set up to promote research to benefit FA-affected patients and provide information for FA families. Fanconi Hope is the charity set up to support the aims of the Family and Clinical Network.
Helpline: 0300 330 0803
Every day 10 families are told their child has cancer. As the UK's leading children's cancer charity, CLIC Sargent is the only organisation to offer them all round care and support. That’s because we’re there every step of the way.
Children’s Cancer and Leukaemia Group
A national professional body responsible for the organisation of the treatment and management of children with cancer in the UK.
Action for Sick Children
Helpline: 0800 074 4519
UK’s leading children’s healthcare charity
The Sick Children’s Trust
Tel: 020 7931 8695
Founded to ensure that when children are seriously ill in hospital they can benefit from the love and care of the whole family.
Contact a Family
Helpline: 0808 808 3555
www.cafamily.org.uk/Direct/f24.html - Information about Fanconi Anaemia
Provides advice, information and support to the parents of all disabled children - no matter what their disability or health condition.
Dedicated Exclusively to researching blood cancers and disorders including Leukaemia, Hodgkins and other lymphomas and myeloma
The Anthony Nolan Trust
General Enquiries: 0303 303 0303
The Anthony Nolan Trust takes back lives from leukaemia by providing lifesaving donors for patients in need of a bone marrow transplant.
The British Bone Marrow Registry
Tel: 0300 123 23 23
The British Bone Marrow Registry is a division of the National Blood Service, working in co-operation with the other UK bone marrow/blood donor registries.
Human Fertility & Embryology Authority
Information on pre-implantation genetic diagnosis.
Genetics Interest Group
The Genetic Interest Group (GIG) is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
NHS Choices – Why do I need a genetic consultation?
UK Genetic Testing Network
The network is a collaborative group of genetic testing laboratories, clinicians and commissioners of NHS genetic services and involves patient support groups.
Department of Health
Genetics general information pages.
Founded in 1994 by Josephine Quintavalle and Margaret Nolan. It is a public interest group focusing on ethical dilemmas surrounding human reproduction, particularly the new technologies of assisted conception.