MRKH - Mayer Rokitansky Kuster Hauser Syndrome
The National Centre for Adolescent and Adult Females with Congenital Abnormalities of the Genital Tract
www.imperial.nhs.uk/patients/helpandsupport/supportgroups/mrkh-syndrome/index.htm
The National Centre for Adolescent and Adult Females with Congenital Abnormalities of the Genital Tract is based at Queen Charlotte’s & Chelsea Hospital.
Survivorship Programme - The Centre has a support group for women with congenital abnormalities of the genital tract. The majority of the patients have MRKH (Mayer Rokitansky Kuster Hauser) syndrome. It is the largest MRKH support group in the UK, with a membership of over 400.
MRKH UK
www.mrkh.org.uk
MRKH UK Support group website contains comprehensive information and contacts people with the condition
The Magic Foundation
www.magicfoundation.org/www/docs/107.290/disorders-of-sexual-development_in_children
American website with comprehensive information on MRKH Syndrome. The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.
Infertility & Surrogacy
NHS Choices - IVF
www.nhs.uk/Conditions/IVF/Pages/Introduction.aspx
Information on IVF from NHS Choices including why, when and how it should be performed and with links to other useful resources.
Infertility Network UK
Helpline: 0800 008 7464
www.infertilitynetworkuk.com
Network for people experiencing fertility problems, offering phone and one-to-one support, plus excellent website including factsheets and links to further support and information
Fertility Friends
www.fertilityfriends.co.uk
Online self-help community offering support and understanding to those experiencing fertility difficulties
Human Fertilisation & Embryology Authority (HFEA)
www.hfea.gov.uk
www.hfea.gov.uk for information on Egg Sharing Schemes
The UK's independent regulator overseeing safe and appropriate practice in fertility treatment and embryo research
National Gamete Donation Trust
Helpline: 0845 226 9193
www.ngdt.co.uk
Practical information for those wishing to donate eggs and sperm, and those requiring treatment with donor gametes
UK Donorlink
www.ukdonorlink.org.uk
A pilot voluntary contact register set up to enable people conceived through donated sperm, and / or eggs , their donors and half-siblings to exchange information and where desired to contact each other. The register is specifically for anyone over the age of 18 who was conceived using donated sperm or eggs, or who donated, in the UK, before the Human Fertilisation and Embryology Act came into force in August 1991.
COTS
Provide help and advice to surrogates and intended parents
Information Line: 0844 414 0001 (Recorded message)
www.surrogacy.org.uk
Surrogacy UK
www.surrogacyuk.org
UK voluntary organisation that provides information and support for anyone with an interest in surrogacy.
Adoption
British Association for Adoption & Fostering (BAAF)
Tel: 020 7421 2600 (see website for regional numbers)
Web: www.baaf.org.uk &
www.adoptionsearchreunion.org
This website is intended to be the first port of call for anyone thinking about searching for or making contact with birth and adopted relatives or researching an adoption that took place in the UK.
Adoption UK
Helpline: 0844 848 7900, 10am to 4pm daily
Web: www.adoptionuk.org.uk
Helpline for adoptive families, prospective adoptees and professionals in the field of adoption.
NCH Action for Children
For an Information Pack call: 0845 355 5533
www.actionforchildren.org.uk/content/186/Adopting-a-child
We believe that children need families who can help them grow up feeling good about themselves, with knowledge of their own culture, language and religion.
Our projects connect adoptive families from all cultural backgrounds, reflecting the children looking for a new family. We also have specialist projects that focus on finding families for children from black and minority ethnic backgrounds.
National Organisation for Counselling Adoptees & Parents (NORCAP)
Tel: 01865 875000
www.norcap.org.uk
Mon to Fri, 10am to 4pm
Nationwide charity supporting and guiding adults whose lives have been touched by adoption. Includes register of those affected that may help you trace a relative.
Post-Adoption Centre
Helpline: 0870 777 2197
Mon to Thurs, 10am to 1pm, and Thurs evenings, 5.50pm to 7.30pm
www.postadoptioncentre.org.uk
Trained and experienced counsellors offer a friendly listening ear, confidential advice, course and workshop details and, where appropriate, appointments for face-to-face counselling or referrals to other services
After Adoption
www.afteradoption.org.uk
Helpline Numbers: ActionLine: 0800 0 568 578
TALKadoption: 0808 808 1234
BirthTies: 0800 840 2020
After Adoption offers a wide range of services and provides information, support and advice to all those affected by adoption. Working with children, families and adults to offer support throughout the adoption process. This can involve helping a birth parent to overcome the loss of their child to adoption, helping an adopted adult to search for their birth relatives, giving support to adoptive families and providing information to birth relatives.
Natural Parents Network
www.n-p-n.co.uk
An organisation for natural parents and other relatives who have lost children to adoption.
Trans-national and Trans-racial Adoption Group
www.ttag.org.uk
TTAG aims to provide opportunities for adoptees adopted into families whose racial and cultural heritage is different from theirs to meet each other. By developing relationships and friendships through sharing experiences and ideas, we as individuals and our organization will become even stronger. To promote the needs of trans-nationally and trans-racially adopted adults and children on a local and national level.
New Family Social
Tel: 0843 2899457
www.newfamilysocial.co.uk
New Family Social is run by, and for, LGBT adopters and foster carers across the UK. Our families find support and friendships through a network of local groups, and in our online member’s area. Advice and encouragement is also available to those considering adoption or fostering.
Inter-country Adoption Centre
www.icacentre.org.uk
The Inter-country Adoption Centre is a registered charity and voluntary adoption agency, and the only specialist centre for inter-country adoption in the UK.
We offer a variety of services to inter-country adoptees, to prospective and established adopters, to birth families and to professionals. Our site details the services and we hope that you find it helpful and informative.