Tissue & Organ Donation
NHS National Transplant Week – Pass it On Campaign
www.transplantweek.co.uk
This year’s Transplant Week theme is Pass it On - focusing not just on signing up to the Organ Donation Register but also the importance of people talking about their wishes to family and friends so they know what they would like to happen after their death.
Transplant Support Network
Helplines: 0800 027 4490 / 4491
www.transplantsupportnetwork.org.uk
Offers support to patients, family and carers of all solid organ transplants and medical implants.
NHS Choices – Organ Donation & Liver Transplant
www.nhs.uk/conditions/organ-donation/Pages/Introduction.aspx - Organ Donation
www.nhs.uk/conditions/Liver-transplant/Pages/Introduction.aspx - Liver Transplant
Introduction and information on organ donation and how it works.
HTA (Human Tissue Authority)
www.hta.gov.uk/bodyorganandtissuedonation.cfm
Human tissue has many different uses including transplantation, teaching, medical research and display in public places such as museums. There are many different types of human tissue including: skin, body parts, organs, stem cells and bone and they have different uses. The HTA has an important role in making sure human tissue is used safely and ethically, and with proper consent. On this link you can find out more about tissue donation for different purposes and the role of HTA regulation.
NHS Blood and Transplant Donor Line
Organ Donor Line: 0300 123 23 23
www.organdonation.nhs.uk
Child Liver Disease & Sick Children
The Children's Liver Disease Foundation
Billiary Atresia - www.childliverdisease.org/content/590/Biliary-Atresia
Formed in 1980, Children's Liver Disease Foundation (CLDF) is a unique national charity dedicated to fighting all liver diseases of childhood. a comprehensive information hub for healthcare professionals and the general public. It offers a tailored support service for young people with liver disease and their families. Is the lead charity supporting medical research into all aspects of children's liver diseases as well as the voice for young people, their families and adults diagnosed with liver disease in childhood.
British Liver Trust
Free Helpline: 0800 652 7330
www.britishlivertrust.org.uk
The British Liver Trust is the national charity working to reduce the impact of liver disease in the UK through support, information and research.
Contact a Family
Helpline: 0808 808 3555
www.cafamily.org.uk
Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.
Action for Sick Children
Helpline: Freephone 0800 074 4519
www.actionforsickchildren.org
UK’s leading children’s healthcare charity, specially formed to see that children receive the highest standards of healthcare possible
The Sick Children’s Trust
www.sickchildrenstrust.org
The Sick Children’s Trust believes that no child should be separated from their family while in hospital receiving treatment for serious illness Our mission is to provide high quality 'Home from Home' accommodation for families whose children are receiving hospital treatment for serious illness.
The Family Fund
General enquiries Low cost line: 0845 130 4542
www.familyfund.org.uk
The Family Fund provides grants to families with severely disabled children, based on families' views and needs and is open to families with children and young people up to their 18th birthday who have a severe disability.
The Shared Care Network
www.sharedcarenetwork.org.uk
Shared Care Networks Short breaks support families caring for disabled children and can promote family stability and ease the strain which can build up in a family dealing with the demands of caring for a severely disabled child. They allow parents to spend time with their other children and benefit the disabled child by tackling social isolation.
The Children’s Trust
Telephone: 01737 365 000
www.thechildrenstrust.org.uk
The Children’s Trust is a national charity working with children who have multiple disabilities and complex health needs. We are based in Surrey but offer our services to children from across the UK.