Video report by ITV News Correspondent Rachel Younger
The mother of an autistic boy who was held under section in a mental health institute has told of her family's terror as her son's 12 week stay turned into a year and a half.
Matthew Garnett's mother had been trying to find the right education for her son, who has learning difficulties, when he was taken from her and sectioned for his own safety.
"Every cell of my body was screaming out, protect my child, get him away from a sort of danger - which I felt," Isabelle Garnett told ITV News.
Matthew ended up in a mental health institute after being seen by a psychologist over his difficult behaviour and he was referred to Collaborative Assessment and Management of Suicidality (CAMS).
From that moment on, Isabelle says "things were catastrophic for Matthew".
His behaviour deteriorated quickly and he attacked his father at home before police came and he was taken to A&E where he was sectioned for a 12 week assessment.
Those 12 weeks turned into 18 months, with Matthew often asking his mother whether he was in prison.
"He was tearing his hair out, he was freezing for long periods of time unable to speak or move, we were just really terrified for him," Isabelle told ITV News.
New figures show the number of children with learning difficulties and autism locked up in mental health hospitals has more than doubled in four years.
A report by the Children’s Commissioner for England, Anne Longfield, has flagged that too many young people are being admitted to these facilities unnecessarily and are spending years in them.
Ms Longfield adds that she is concerned the current system of support for those with learning disability or autism is letting children down.
Her report includes “shocking evidence of poor and restrictive practices” and heard from children about how traumatic a stay in a mental health hospital can be.
The report concludes: “This research has shown that too many children are admitted to hospital unnecessarily and spending months and years of their childhood in institutions when they do not need to be there.”
The report said: “It is particularly concerning that this report comes at the end of the Government’s Transforming Care programme but that there has been so little change.
“Despite report after report and successive government programmes to address this problem, the number of children in hospital remains unacceptably high.”
It adds: “From this research, speaking to children and their families and experts who have been working in this field, the clear message was the need to focus on children’s journeys before they are admitted into inpatient care.
“Children, families and staff working in this area spoke again and again about the failure to provide appropriate support to children when they are in school and living the community, and particularly when they reach a crisis point has contributed to inappropriate hospital admissions and delayed discharges.”
The report said 250 children with a learning disability or autism were identified in a mental health hospital in England in February 2019, compared to 110 in March 2015.
According to the report, NHS England state that the figure of 110 was due to under-identification of these children in the past and that the true figure for children with autism and learning disability in inpatient care in 2017 was 260.
“Even with the adjusted figures, the number of children in hospital has not reduced.
“It is very concerning that the NHS has failed to record accurately the number of children in long term inpatient care, their conditions and their outcomes,” the report said.
Ms Longfield said there around 250 children with a learning disability and/or autism in England living in children’s mental health wards.
“They are some of the most vulnerable children of all, with very complex needs, growing up in institutions usually far away from their family home,” she said.
“For many of them this is a frightening and overwhelming experience.
"For many of their families it is a nightmare.
“A national strategy is needed to address the values and culture of the wider system across the NHS, education and local government so that a failure to provide earlier help is unacceptable, and admission to hospital or a residential special school is no longer seen as almost inevitable for some children.
“There has been report after report and promise after promise to address this issue and yet the number of children in hospital remains stubbornly high.”
In response to the report, a spokesperson for the Government said: “We are determined to reduce the number of autistic people or people with learning disabilities in mental health hospitals – significant investment in community support has already led to a 22% reduction since March 2015.
“The NHS is committed to reducing numbers of people with a learning disability and autistic people who are inpatients in mental health hospitals by 35% by the end of March 2020 and through the Long Term Plan we will reduce numbers even further by investing in specialist services and community crisis care and giving local areas greater control of their budgets to reduce avoidable admissions and enable shorter lengths of stay.”
An NSPCC spokesperson added that the report “makes for disturbing reading” and “it’s clear that some of our most vulnerable children are still being horribly failed”.
“No child should be left to languish alone and it’s important that the Government takes urgent action to provide high quality, community based care that can prevent the need for children to be placed in secure hospitals.”
Tim Nicholls, head of policy at the National Autistic Society, said autistic children and adults “are being failed by a broken system”.
It comes amid another autism case in which a boy was locked in a mental health hospital for seven years.
Leo Andrade's son, Stephen, lives with severe autism, learning difficulties and challenging self-harming behaviour. For years he was kept in hospitals up to three hours from home due to lack of places more local.
Stephen and Leo's story:
Video report by ITV News Correspondent Martha Fairlie
Speaking to ITV News, Stephen's mother said: "I had no idea that you would put a person who has severe autism in a mental institution. I thought that was like medieval, or barbaric like in a third world country."
Now living at home, Stephen suffers with the memories of his time at the mental health hospital.
"There are moments that are incredible hard," his mother told ITV News.
"When I see my son crying for no reason. He's crying and he shows such sadness, he screams like he is in pain or he starts shaking like he's having flashbacks."