Leanne Lyon suffers from seizures, black-outs, and sometimes memory loss.
It is caused by a rare non-cancerous brain tumour called a Hypothalamic Hamartoma, which usually occurs in an area of the brain that produces hormones.
Just 1 in 200,000 people are believed to have the condition.
In just one day, Leanne can have tens of seizures and she is desperate to improve her quality of life. Doctors at the John Radcliffe Hospital in Oxford have told Leanne that although her tumour is small, just 6mm by 6mm, it is deep inside her brain.
This makes it too dangerous to remove the tumour using open brain surgery.
In America, surgeons have begun carrying out keyhole laser brain surgery for patients with Leanne's condition.
Although it is not risk free, early results show that it can be safer than open brain surgery.
Patients with Leanne's condition have also reported some success, with seizures becoming less frequent or sometimes stopping altogether.
Leanne has sent scans of her brain to the Barrow Neurological Institute in Phoenix, and has been told that she could be a good candidate for surgery.
Now though she needs to raise £95,000 to pay for the operation.
She and her family have only just begun fundraising, raising £1500 through yard and car boot sales. They have a long way to go to bring a flight and an operation within reach.
Click below to watch a report from ITV News Anglia's Olivia Paterson