Watch a report by ITV News Anglia's Hannah Pettifer.
An eleven year old boy from Essex is hoping to challenge people's assumptions about blindness.
Sam Baker suffers from a condition that has left him with no peripheral vision or "tunnel vision" and uses a cane to help him get around.
Sam now wants to raise awareness that the vast majority of cane users still have some vision.
According to the RNIB 93% of people registered blind or partially sighted can see something.
But people's perceptions when they see the cane are that they can't see anything.
- RP is hereditary and causes gradual deterioration of peripheral vision
- It can lead to total blindness
- At the moment there is no cure
Retinitis Pigmentosa is a hereditary condition and Sam's father and brother both have it
Tina Houlihan is the Chief Executive of RP Fighting Blindness. A condition which affects 1 in 4,000 people.
She spoke to ITV News Anglia's Jonathan Wills.