Watch a report from ITV News Anglia reporter Elodie Harper
A nine-year-old girl from Wilstead near Bedford has been raising money for her younger brother by going on a 47-mile sponsored bike ride.
Grayson, who is seven, has an extremely rare genetic condition, but he can always rely on big sister Lily's support.
He needs 24-hour care as he was born blind and with severe learning disabilities.
His sister Lily is his biggest supporter. She has just completed a 47-mile bike ride to raise money for Grayson's support.
The money nine-year-old Lily has raised will help the family completely revamp their house to make it safe for Grayson as he grows up.
They are also hoping for support from the Disability Funding grant, though this would still not cover the full cost.
Lily's ride hasn't yet raised all the money Grayson needs, but to her family, her love for her brother is priceless.