A Cumbrian father has launched a national campaign to try to get greater recognition for the role of unpaid carers looking after their seriously ill children.
The campaign is in conjunction with the charity Wellchild. Families are being encouraged to tell their own stories, using the hashtag #NOTANURSE_BUT.
Craig Hatch is the father of 17 year old Fraser Hatch, who has cerebral palsy. Every day he has to undergo complex medical procedures, which requires an exhausting level of care from his parents at their home at Broughton Cross near Cockermouth.
For many years Craig and his wife, Ellis, had to care for Fraser with little outside support.
It's hard work. You have to get involved in lots of things you never envisaged that you would. A lot of medical interventions, a lot of clinical care and it's none stop, 24 hour care that we need to provide for Fraser
The campaign aims to highlight how the level of care by families with seriously ill children often goes unseen and is misunderstood.
The #NOTANURSE_BUT campaign is something that we pulled together as a parent advisory group with Wellchild because we act as nurses, we do a lot of medical intervention, but we are not nurses, we are parents primarily. So the campaign will show videos of all the medical interventions that we have to do.
He hopes that the stories they gather will influence decision makers and help to make more funding available to keep children, like Fraser, safe in their own homes.