Alfie Andrews was born with hypoplastic left heart syndrome which effectively means he has half a working heart. The four-year-old from Lincoln has just had his third heart operation at Glenfield and his parents say they don't want to have to travel further for care in the future.
NHS England announced plans last summer to stop heart surgery at Glenfield children's Heart unit and a 16 week public consultation is underway. It's because three surgeons there aren't doing 125 operations a year each in line with safety and quality targets.
The hospital trust though argues that 'quality of care should come ahead of quantity of operations'. They also argue numbers are being used in an inappropriate way.
Dr Frances Bu'Lock, Consultant East Midlands Congenital Heart Centre:
It’s our job to organise services so that every adult and child with congenital heart disease in this country gets not just safe or good care, but excellent care. We’ve worked hard with patients and clinical professionals to develop a set of standards to achieve this, and heard clearly throughout this process that this would only be worth something for patients if acted upon.
We fully support these standards. NHS England must ensure that the standards are applied for the benefit of patients, by ensuring that expertise is concentrated where it is most appropriate. The proposals put forward by NHS England in July 2016 should improve patient outcomes and help address variations in care currently provided.