A mother is fighting for more recognition of the rare and little known illness she says claimed her daughter's life.

Merryn Crofts died a year ago just ten days after her 21st birthday.

The budding actor had a severe form of M.E. - a neurological illness which affects up to 17 million people worldwide.

Merryn died at the age of just 21. Credit: Family

For six years Merryn's family saw her waste away as the condition affected her speech and her ability to walk.

By the end, even sunlight was painful for the young woman who her family say could light up any room.

However, some people think the condition isn't real. Merryn's family are speaking out in hopes of raising more awareness.

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