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A family's lives have been turned upside down after their baby was diagnosed with spinal muscular atrophy.
Six month Harris Khan's family now have a fight to get him on the drugs that could help.
But, it's a race against time as they've been told it's unlikely he'll make his first birthday. And, they've been told that a medication that was once available through the NHS isn't an option.
Harris's father spoke to our correspondent Amy Welch.
A spokesperson for NHS England said: