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  1. ITV Report

Mum who raised fortune for lifesaving surgery launches charity to help others

Samantha's now helping others after surgery stopped her skull crushing her spine Credit: ITV News

A mum from Rochdale, who was forced to spend almost £500,000 on surgery to save her life, is today launching a charity focused on her rare condition.

Samantha Smith endured traumatic operations in the United States to restructure her neck, which had been weakened by Ehlers-Danlos Syndrome. The surgery was not available on the NHS.

The EDS Foundation will "raise a flag," she says, for those living with the syndrome across the country.

  • Our Correspondent, Tim Scott has this report: