A dad from Wigan is running an ultra marathon on Saturday 17 April, to raise awareness and money for research into, Infantile Spasm Syndrome.
It's after Andrew Yong-Ching's son Theo was diagnosed with the illness, which is a rare form of epilepsy.
Baby Theo forgot how to smile and no longer recognised his parents; Doctors mistook it for severe colic because of the shakes and body crunches it produces.
Last year our correspondent Rob Smith reported on Theo's condition and as a result one couple recognise it in their own child after seeing the story on TV.
One child is born every day with the syndrome and the condition can cause long-term damage.
The family hope that by raising awareness it can help more families get the help and support that they need.
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