Families calling for a pioneering cystic fibrosis drug to be made available on the NHS took their fight to London today.
It has been three years since Orkambi was licensed for use, however, the NHS says it's too expensive.
Parents presented a petition to the company that produces the drug.
Campaigners say the breakdown between the manufacturer and the NHS is costing lives.
Our reporter, Rachel Hepworth, has been in London where campaigners have been protesting.