A mother from Kent, with a teenage daughter who suffers from a rare muscle wasting disorder, has welcomed health officials' decision to make a drug that treats the condition available on the NHS.
Melissa Bolt, who lives the Isle of Sheppey with her 15-year-old daughter Abi, has been pushing for Spinraza be made available through the health service
Clinical advisers had initially rejected the drug - which potentially costs hundreds of thousands of pounds per patient - saying its long-term benefits were questionable.
Today NHS England announced it will fund treatment for hundreds of adults and children, like Abi, who are living with Spinal Muscular Atrophy.
It announced it had negotiated a deal with a company that makes the drug. It's a decision that Abi's mother has welcomed.
Within the next few weeks the 15-year-old will receive her first spinal injection of Spinraza - on the NHS.
The drug has the capability to tackle the disorder that leaves Abi struggling to move, breathe and swallow.
Activists, who have been campaigning for the NHS to provide the drug, believe it will help patients struggling with the condition to become more independent.
- Watch the full story from our reporter John Ryall