A primary school teacher from Kent, who was diagnosed with a rare lung condition, was first told she may have asthma.
Alex Charlesworth from Dartford is now trying to raise awareness of Pulmonary Hypertension.
The disease restricts the flow of blood between the heart and lungs.
Tom Savvides reports:
Every morning Alex Charlesworth prepares her medication.
She wears a pump 24 hours a day through which drugs are pumped into her body.
It's a rare disease that restricts the flow of blood between the heart and the lungs because arteries become stiff.
SYMPTOMS OF PULMONARY HYPERTENSION
Shortness of breath
Feeling faint or dizzy
Swelling in the legs, ankles, feet or stomach
Iain Armstrong- Pulmonary Hypertension Association:
Alex knows that she has a life long condition but having a diagnosis means she can now control the symptoms.