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Video. One third of those affected by the condition ME, or Chronic Fatigue Syndrome, have no access to specialist care. This worrying statistic has come to light through a new study by the University of Southampton.
Experts say the illness still isn't being taken seriously. One sufferer says the lack of support makes living with ME even harder for him.
Sally Simmonds spoke to Tim Reynolds, who has ME, Clare McDermott, Research Fellow at the University of Southampton and Mary-Jane Willows from the Association of Young People with ME.
We spoke to Mary-Jane Willows, the CEO of AYME (Association of Young people with ME) about why ME sufferers aren't getting access to local specialist funding.
One in three adults with severe M.E. has no access to local specialist services according to researchers at the University of Southampton.
They say a third of the units dedicated to patients with Chronic Fatigue Syndrome nationwide, aren't providing the care that's recommended for housebound patients, primarily due to a lack of funding.
It's estimated around 250,000 people in the UK have the condition.
Clare McDermott who led the study said: