One in three adults with severe M.E. has no access to local specialist services according to researchers at the University of Southampton.
They say a third of the units dedicated to patients with Chronic Fatigue Syndrome nationwide, aren't providing the care that's recommended for housebound patients, primarily due to a lack of funding.
It's estimated around 250,000 people in the UK have the condition.
Clare McDermott who led the study said:
People with ME should be able to seek the advice of a specialist service close to their homes. We were surprised by the lack of services and access to services that our survey revealed. Even if the local Trust provides a service, some housebound patients will never get to use it. Many, very ill patients are going without."
More top news
Amanda has your forecast
Health campaigners are vowing to 'fight on' after the High Court ruled in favour of a controversial shake-up of stroke services in Kent.
One wheelchair user from Crowthorne says she's had enough of being humiliated on her journeys, by being unable to get on or off carriages.