- 3 updates
The Government has denied patients with rare diseases may miss out on vital medication because of the way treatment is funded.
A Department of Health spokeswoman said making sure treatment for patients with rare diseases was a "key priority" and they would be publishing a strategy shortly.
Some patients with rare diseases suffer an "agonising wait" for the medication they need because of the way it is funded, MPs have said.
Labour MP Dave Anderson, who led the inquiry into funding of medication for rare diseases said the UK needed to be in a position to deliver treatment "swiftly".
Changes to the way cutting-edge therapies are funded on the NHS could prevent patients with rare disease getting the treatment they need, MPs have warned.
Money previously put aside specifically to pay for medication for rare diseases has now been filtered into the overall NHS budget for services in England, warned the All Party Parliamentary Group for Muscular Dystrophy (APPG).
They expressed concerns patients with rare conditions would have to compete for funds alongside medication for more common conditions, like diabetes or heart disease.
The APPG called on the Government to re-establish "ring-fencing" for funds to buy special medication so people suffering from rare diseases still have access to the treatment they need.