A mother from Newcastle says she's struggling to get medication for her son who has an extremely rare neurological condition.
Jack Duffy suffers up to 60 seizures a day, and can't sit up or walk. He has non-ketonic hyperglycinemia (NKH) which affects only 1 in 60,000 babies.
Mum Lisa Duffy has had difficulty getting the recommended medication as it doesn't have an import certificate. Researchers at University College London say the treatment is only able to manage the condition, not cure it, and further studies are needed.
Robin Davies reports.