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Mortality rate of cystic fibrosis patients 'a scandal'

The number of cystic fibrosis sufferers who die while waiting for a lung transplant is 'a scandal", a charity has warned. The Cystic Fibrosis Trust said only 20% of the lungs donated in the UK are used in transplants.

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Experts call on NHS to develop 'lung allocation system'

Changes should be made to the way lung transplants are allocated on the NHS, so more cystic fibrosis sufferers are prioritised, a charity has said.

The Cystic Fibrosis Trust called on NHS Blood and Transplant to develop a new "lung allocation system" that balances the needs to medical urgency and long-term outcomes.

There is concern across the cystic fibrosis community about equity in lung allocation.

There is a perception that the likelihood of getting a lung transplant, and the time frames for this vary according to where an individual is listed.

A donated organ will not currently necessarily reach the most in-need candidate anywhere in the country.

– The Cystic Fibrosis Trust

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