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Family aim to raise £50,000 to keep baby daughter alive with pioneering treatment

A mum is fighting to save her baby daughter's life by raising money for pioneering treatment available in the US.

Lydia with her mum Bethan and sister Caitlyn. Credit: Wales News Service

Little Lydia Germon, seven months old, defied the odds to be born alive after her mother refused to have a termination.

Lydia has a brain abnormality that has caused her head to swell considerably.

Doctors gave her just 24 hours to live when she was born last October - but the tiny tot has been battling to survive every day since.

Her family hope £50,000 pioneering treatment in the US can give her new hope.

Lydia Germon with her mum. dad and sister. Credit: Wales News Service

Mum Bethan Germon, 28, has refused to give up on her baby girl.

We were warned that our baby had Dandy Walker varient which is a rare condition affecting the brain.

It has caused a massive build up of fluid in Lydia's brain called hydrocephalus and she has had countless surgeries and shunts fitted to try and help but so far nothing has worked.

Her condition is not degenerative. She shouldn't get worse and so if we can treat her now, she should have a chance of a normal life.

There is a surgeon in America who thinks he can help us.

We are focusing all of our energies on fundraising to get Lydia there

– Mum Bethan Germon

Renowned neurosurgeon Benjamin Warf is well known in the state of Boston for his work with children suffering from severe hydrocephalus.

Bethan and her husband David Germon, 28, have contacted Dr Warf and believe he can help.

The operation could reduce the fluid in Lydia's brain giving it a chance to grow and improving Lydia's quality of life considerably.

Now the family from Gendros in Swansea have to raise £50,000 to fund the surgery they believe will save their daughter's life.

Rachel Burton, Director of Operations for the Children and Women's clinical board at Cardiff and Vale University Health board said:

Dandy Walker variant is a very complex condition and there are many layers of uncertainty in its overall impact on the patient and the treatment they may receive.

This makes it hard to predict with any certainty what the effects will be in a particular individual and their prognosis.

This uncertainty can be distressing for any family.

The Health Board is committed to do all we can to support Lydia and her family during this difficult time.

– Rachel Burton, Cardiff and Vale University Health Board