A 16 year old boy from Tenby has spoken out about his potentially life-threatening heart condition, in the hope it will encourage others to get tested.
Frank Arentz is a promising rugby player, footballer and triathlete, but earlier this year after attending a charity heart screening, he discovered he had a form of heart disease called Hypertrophic Cardiomyopathy (HCM).
It means that the muscle of the heart wall becomes thickened, making it harder to pump blood.
Doctors told him he could die if his heart rate rises above 180 beats per minute, and that he should give up rugby, and other high intensity sports.
Figures from the charity CRY (Cardiac Risk in the Young), suggest 12 people under the age of 35 lose their lives to sudden cardiac death in the UK every week.
Dean Mason was one of them. He was just 26 when he died on a family holiday in 2006.
He had no symptoms before his death but was later found to have an undiagnosed heart condition.
His family have been working with CRY and fundraising ever since to help pay for the screening equipment.
Since his diagnosis, Frank has been determined to put a positive spin on things, taking up photography, golf and guitar.
This week he met Dean's family and his brother Dan to talk about the potentially life-saving screenings.
Now they're hoping to spread the message together.