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  1. ITV Report

Welsh MS sufferers not getting access to vital treatments

Credit: PA

People living with multiple sclerosis in Wales need urgent access to the right treatment, care and support according to the MS Society Cymru.

The campaign group says Welsh people living with MS are not getting access to vital services and treatments because of a lack of capacity.

They say those living with the progressive form of the condition feel like they are on the 'scrap heap'.

5000
people in Wales affected by MS.

People who live with MS in Wales are experiencing difficulties and lengthy delays in accessing vital treatments and services; and compared to the rest of the UK are less likely to access specialist help when they need to.

For people living with progressive forms of the condition to feel like they are on the 'scrap heap' is totally unacceptable.

MS Specialists have told us that timely follow up is becoming more and more difficult resulting in less time to assess people effectively, discuss treatment options and manage risks.

A new drug called Ocrelizumab has been recommended by the European Medicines Agency (EMA) and the European Commission for certain people with Primary Progressive MS. This is a significant breakthrough for people with progressive MS as presently there are no Disease Modifying Therapies available for them.

We are hopeful that this will be approved for use in Wales. However as it currently stands, MS Specialists say that the lack of infrastructure that is currently in place makes it difficult for them to cope with existing treatments let alone any new treatments which are in the pipeline.

– Lynne Hughes, Director of MS Society Cymru

The Welsh Government say they are committed to improving services for people living with MS.