The Welsh Government has defended a new test for Down's syndrome in pregnancy against accusations it is trying to eliminate the condition from society.
Wales has become the first country in the UK to offer non-invasive prenatal testing (NIPT) on the NHS aimed at women who have a higher chance of Down’s, Edward’s or Patau’s syndrome.
It involves a blood sample and is offered as an alternative to an invasive test which carries a risk of miscarriage.
Down's syndrome is the most well known of the three conditions.
Around 40,000 people in the UK live with it and each have different degrees of disability. It is caused by an extra chromosome.
There are associated health conditions including learning disability and potential heart and other problems but every person with the condition is different.
21 Plus, a support group for parents who have children with Down syndrome meet weekly in Abergavenny.
Some mothers told ITV News that while they have no objection to a safer test, they do question the thinking behind it.
Some fear it could lead to more pregnancies being terminated.
Language and the conversation around a positive result is the biggest concern.
Tanika Bartlett-Smith is proud of her little boy Leo. “He’s changed all of our families lives for the better” she said.
However, the occupational therapist said she faces a constant battle with the medical profession about the language used.
Tanika believes language is more important than ever because of the introduction of the new test.
She would like to see a change the conversation around a positive result.
"I think if they (medical profession) were to do the test and were to say ‘yes your child does have Down Syndrome, however this is the life they can lead, this is the positive experience of fellow parents - now would you like to make that decision?’ Then I think that’s understandable, but I don’t think that is being offered.”
The Welsh NHS accepts language has needed improving and clinical leaders say they have updated information given to expectant mothers.
In an interview for ITV Wales, Health Secretary Vaughan Gething says NIPT is about informed choice and not eliminating Down Syndrome from society.
Some people with Down Syndrome support the new test.
Sara Pickard has the condition. She’s an actress, local councillor and has been named one of Wales’ 100 leading women.
The Welsh Government said the test will be be evaluated over the next three years.
You can see more about this story on Wales This Week: The End of Down's Syndrome? tonight at 8pm on ITV Cymru Wales.