Laura Jones, from Swansea, knew something was wrong with one of her twin daughters as soon as she was born.
The 31-year-old mother said that while baby Elsie was placid, sister Emilie was screaming and crying in pain almost constantly.
After scans were carried out, it was discovered that Emilie had a large tumour in her stomach which turned out to be a rare cancer called neuroblastoma.
Emilie was diagnosed at seven weeks old.
Laura and her husband Jonathan, are also parents to seven-year-old Harrison.
They had been trying for a second baby for five years.
The third round of IVF worked and the couple were told they were expecting twin girls.
Baby Emilie was rushed for emergency surgery at Cardiff’s University Hospital of Wales to start her treatment.
She had surgery on her spine to remove pressure on her spinal cord before having four rounds of chemotherapy to reduce the size of the tumour.
The family are now waiting for Emilie’s next scan in December to see how the tumour has responded to treatment.
Laura and Jonathan are keen to raise awareness of neuroblastoma which affects around 100 children each year in the UK.
The family has been chosen to launch Cancer Research UK’s Kids & Teens Star Awards in Wales.
The awards celebrate the strength shown by youngsters who have been diagnosed with and treated for cancer.
What is neuroblastoma? (NHS)
- Neuroblastoma is a rare type of cancer that mostly affects babies and young children.
- It develops from specialised nerve cells (neuroblasts) left behind from a baby's development in the womb.
- Neuroblastoma most commonly occurs in one of the adrenal glands situated above the kidneys, or in the nerve tissue that runs alongside the spinal cord in the neck, chest, tummy or pelvis.
- It can spread to other organs such as the bone marrow, bone, lymph nodes, liver and skin.
- It affects around 100 children each year in the UK and is most common in children under the age of 5.
- The cause is unknown. There are very rare cases where children in the same family are affected, but generally neuroblastoma doesn't run families.