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  1. ITV Report

'Lifesaving' cystic fibrosis drugs to be made available in Wales

Credit: PA

Drugs which could transform the lives of hundreds of people living with cystic fibrosis in Wales will soon be available on the NHS.

The Welsh Health Minister Vaughan Gething says he's secured a deal with pharmaceutical company Vertex for drugs Orkambi and Symkevi to be available to patients in Wales following an agreement made in England.

People with cystic fibrosis and their families have been campaigning for the drugs to be made available on the NHS for several years.

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The Welsh Health Minister says the highest priority patients should receive treatment in December.

I am very aware that patients and their families will expect these medicines to be made available promptly. I have therefore asked for the agreement to be finalised before the end of November to allow the highest priority patients to access treatment in December with all eligible patients being offered treatment from 2020.

– Vaughan Gething AM, Health Minister

Today’s announcement is good news for the approximately 270 eligible cystic fibrosis patients in Wales who will soon have access to CFTR modulators to treat the underlying cause of their disease.

– Ludovic Fenaux, Senior Vice President, Vertex International

Previously the drug cost more than £100,000 per year per patient and was not available on the NHS.