Father raises awareness of son's rare disability

A father raises awareness about his 4-year-old son's rare form of epilepsy which causes hundreds of seizures a day.

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Father travels to Westminster to discuss son's rare condition

A father from Dorset is heading to Westminster today to raise awareness of his 4-year-oldson's rare form of epilepsy.

Alexander Woodward is meeting Oliver Letwin MP at a reception at the House of Commons later. For more information about epilepsy in young people click on the links below.

  • Information and support for young people and parents of children with epilepsy can be found here.
  • And click here for more information about the disease.

4-year-old's condition can cause hundreds of seizures a day

A father from Bridport in Dorset is hoping to raise awareness of his son's rare form of epilepsy.

4-year-old Charlie Woodward's has Otahara Syndrome, a condition so severe it can cause him to have hundreds of seizures a day. Charlie's father has to keep a constant watch on his son because his disability means he could need medical help, or even die, at any second.

Otahara Syndrome is the same condition that claimed the life of the Prime Minister's son Ivan 5 years ago. Duncan Sleightholme reports:

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