A father from Bridport in Dorset is hoping to raise awareness of his son's rare form of epilepsy.
4-year-old Charlie Woodward's has Otahara Syndrome, a condition so severe it can cause him to have hundreds of seizures a day. Charlie's father has to keep a constant watch on his son because his disability means he could need medical help, or even die, at any second.
Otahara Syndrome is the same condition that claimed the life of the Prime Minister's son Ivan 5 years ago. Duncan Sleightholme reports:
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