Down’s syndrome helplines

See our helplines below for advice and support about Down's syndrome

NHS Choices – Down’s Syndrome

Comprehensive NHS website with everything you need to know about Down's Syndrome including causes, symptoms, diagnosis and treatment, with links to other useful resources.

The Down’s Syndrome Association

Helpline: 0333 1212 300

We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them. We strive to improve knowledge of the condition and champion the rights of people with Down's syndrome. We provide a helpline; provide info about all aspects of living with Down's syndrome including specialist advisers on benefits, education and health and advise new parents or anyone experiencing difficulties.

Down’s Heart Group

Helpline: 0300 102 1644

A charity offering support and information relating to heart conditions associated with Down's Syndrome. We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including: one to one support, telephone helpline and newsletters. Excellent links to other useful organisations.

Down’s Syndrome Research Foundation

Our mission is to undertake research which will help to identify and develop interventions which alleviate the medical, physical, developmental and cognitive conditions associated with Trisomy 21 which are collectively described as Down’s syndrome. We understand the challenges, talk to the researchers and initiate important research.

Down Syndrome Education International

Down Syndrome Education International transforms the lives of young people with Down syndrome through better education. Our scientific research identifies effective teaching methods. Our services help families, professionals and organisations to support successful education. For over 30 years, we have improved understanding of the learning needs of children with Down syndrome and pioneered effective teaching and therapy approaches.


Helpline: 0808 808 3555

Down Syndrome

Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.