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Down’s syndrome helplines


What is Down's Syndrome?

Screening in pregnancy

Support for carers and families

Support for adults

Comprehensive NHS website with everything you need to know about Down's Syndrome including causes, symptoms, diagnosis and treatment, with links to other useful resources.


The Down’s Syndrome Association

Helpline:  0333 1212 300


We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.  We strive to improve knowledge of the condition and champion the rights of people with Down's syndrome.  We provide a helpline; provide info about all aspects of living with Down's syndrome including specialist advisers on benefits, education and health and advise new parents or anyone experiencing difficulties.


Learning Disability Helpline:  0808 808 1111


Down's Syndrome

Mencap is the leading voice of learning disability. Everything we do is about valuing and supporting people with a learning disability, and their families and carers.  Our vision is a world where people with a learning disability are valued equally, listened to and included.  We team up with our network of over 300 local groups to reach people across England, Northern Ireland and Wales.

Down’s Heart Group

Helpline:  0300 102 1644


A charity offering support and information relating to heart conditions associated with Down’s Syndrome.  We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including:  one to one support and newsletters.  Excellent links to other useful organisations.

Wouldn’t change a thing

www.wouldntchangeathing.org We are trying to achieve a world where negative outdated perceptions of Down syndrome are a thing of the past.  We do this by creating and promoting projects designed to directly challenge outdated perceptions.  Our projects are designed to be uplifting, emotive and positive; offering insights into how enjoyable life for all those associated with the condition can be.  Our intent is to leave those who view our work feeling challenged and changed making them more willing to accept those with Down syndrome and to consider them as valid members of society, as schoolmates, as work colleagues or as employees.


Down Syndrome Research Foundation


Our mission is to undertake research which will help to identify and develop interventions which alleviate the medical, physical, developmental and cognitive conditions associated with Trisomy 21 which are collectively described as Down’s syndrome.  We understand the challenges, talk to the researchers and initiate important research.



Helpline:  0808 808 3555


Down Syndrome

Providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.

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