Motor Neurone Disease helplines

Advice and information for people who need more information about Motor Neurone Disease

MND (Motor Neurone Disease)

nhs.uk

End of life care plan information

Comprehensive help and information from NHS Choices including symptoms, diagnosis and treatment, including links to external sites.

MND Association

MND Connect: 0808 802 6262

mndassociation.org

The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND. The helpline provides advice, practical and emotional support and directing to other services and agencies, for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers. Open Monday to Friday 9.00am to 5pm.

The Brain & Spine Foundation

Helpline: 0808 808 1000

Motor Neurone Disease

The Brain and Spine Helpline is staffed by neuroscience nurses and other health professionals. It covers all neurological conditions, from the fairly common to the very rare, and can offer information and support on any medical or related social and emotional issues of concern.

The service answers queries by telephone, letter or email as well as providing an opportunity for people to share their experiences of having a neurological condition on the discussion forum.

Carers

Carers UK

Helpline: 0808 808 7777

carersuk.org

Carers UK provides information and advice to people who provide unpaid support to their relatives, partners or friends who are chronically ill, disabled or frail.

Carers Direct

Helpline: 0300 123 1053

nhs.uk/carersdirect

youngcarers.net

Part of the NHS Choices website. It provides a gateway to comprehensive sources of information for carers. The site has been developed in conjunction with the Princess Royal Trust for Carers, Carers UK, Crossroads, and Young Carers Net. It contains information about benefits, links to national and local support organisations, and a directory of services. (9am to 8pm, Monday to Friday (except bank holidays) (11am to 4pm at weekends) You can ask for a call back in one of more than 170 languages.

Carers Trust

Head Office: Tel: 0844 800 4361

carers.org

Crossroads Care and The Princess Royal Trust for Carers merged in April 2012 to form the Carers Trust. It works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. And they provide access to desperately needed breaks, information and advice, education, training and employment opportunities.

Gov UK – Caring for someone

gov.uk/search?q=carers

Gives details of services and benefits for UK carers.